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Our Mission

HEA is committed to providing the following services to our members, friends and the general public:

  • We create and nourish a community that erodes the isolation and shame brought about by hypospadias and epispadias.
  • We act as a center of information and experience for parents and adults who are considering the available treatment options.
  • We provide a forum for an open exchange of information between the hypospadias/epispadias community and our health care providers.
  • We educate the public at large about the prevalence of these conditions and remove their stigma.
Support and education to end isolation

Toilets from Hell (TFH)

by Betty Engel, HEA Webmaster

People with hypospadias, epispadias, or related conditions usually like to have control over who views their genitals and under what circumstances. They have often suffered from having no control of who sees their genitals, especially when they were children. Of course the doctor visits and surgeries, where strange medical personnel are constantly trooping in to view them for reasons that are often not explained, are often traumatizing. Parents can do a lot to reduce this trauma by restricting access to their child to the fewest number of people as possible, by insisting that medical people talk to the child before the examination, and by requesting that they (the parents) be present, if the child wishes.

Another location where privacy is often limited is the public bathroom. Sometimes there is some comparing going on at the urinals—instant problem for folks with HS or ES. Some folks need to use a stall to maintain their privacy or for other reasons like spraying of urine.

To help bring this issue to the attention of the general public, and especially to people who design and build public bathrooms, we're collecting photos of Toilets from Hell (TFH). Please consider submitting your own photos, if you come across your local versions of the TFH.

High Doors photo
What were they thinking?

No Door photo
We like thrones. But in a public bathroom?

Bike toilet photo
I've heard of multi-tasking, but this is ridiculous!

Glass Toilet Outside  Glass Toilet Inside
The outside is nice; I can comb my hair. But inside, hm, feels like I'm peeing right on the street. Watch out, Houston, I might hit your feet!

  

News

Election of HEA Board, updated 1/9/2012
link to full story

Chat Room Is Working, 1/9/2012
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DEEP UNDERSTANDING: The HEA Website Project, 1/9/2012
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Video of Tiger Devore,
updated 12/28/2011
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Antuanettekl Private Message Is Spam, 12/23/2011
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Latest HEA Newsletter Online, 12/4/2011
link to newsletter in PDF format

 

Upcoming Events

Newsletter
March 2012

New Feature:
Toilets From Hell

Catch the Toilets From Hell photos of toilets we wouldn't use if someone paid us $1,000,000. Please submit more photos to the Toilets From Hell project. We aim to shame!

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