Self-Help Clearinghouse (world-wide list):
http://www.medhelp.org/NJGroups/clearinghouse.htm#INTERNATIONAL

Self-Help Clearinghouses (world-wide list): http://www.umdnj.edu/psyevnts/selfclear.html#Meetings

BEECHAC (Bladder Exstrophy, Epispadias, Cloacal Exstrophy or Hypospadias Australian Community, Inc.)
Phone: (02) 9516 3395 or (02) 4448 3050
Email: info@beechac.org
Website: http://www.beechac.org
Mailing address: Post Office Box 376, Newtown, NSW 2042, Australia
BEECHAC is a new organization which intends to provide the following: (1) an Australian community for people with Bladder Exstrophy, Epispadias, Cloacal Exstrophy or Hypospadias and to provide support and advice for their family members and friends, (2) collaborate with health care professionals such as surgeons, physician’s psychologists, nurses and allied health services to gain their support and work together to improve the care and treatment for BEECHAC members and their families, and (3) generate public awareness of these health conditions, including in educational settings such as pre schools, infants school, primary and secondary school and higher education centres such as TAFE colleges and universities. Awareness raising in work places is also needed for our members to ensure they have quality provision for their specific needs.

BEECE
A new supportive group/listserve for females and/or their mothers living with bladder exstrophy, epispadias or colocal exstrophy of all ages to come together, to support each other, and share experiences.

To sign up, go to http://health.groups.yahoo.com/group/BEECE/

I have asked that they also include women and girls with hypospadias — we'll see if this happens.

Association for the Bladder Exstrophy Community (ABC)
3075 First Street
La Salle, Michigan
USA 48145
Available by phone: Monday - Friday 9am-4pm EST
1-866-300-2222 Toll Free in U.S.
1-(734) 243-9912 (outside U.S)
or 519-679-8774 (In Canada)
Fax : (734) 243-9912
http://www.bladderexstrophy.com/default.htm
Includes a world-wide list of support groups

Listserve Support Groups at Hospital for Sick Kids, Toronto, Ontario, Canada
A 'world-wide' internet support group that uses your own personal e-mail and is available to all those interested in discussing bladder exstrophy (classic, cloacal) and its related conditions (i.e., epispadias). To subscribe, send an email to majordomo@sickkids.on.ca , leave the subject area blank, and in the body type the following two words: subscribe exstrophy . After receiving confirmation that you are a member of the listserve support group, post all messages to the support group by emailing exstrophy@sickkids.on.ca

Adults with Exstrophy Listserve
This listserve is operated by the Hospital for Sick Children and is maintained by Barbara Neilson, a social worker that works with exstrophy families. Only adults with exstrophy can join this listserve. Please email to inquire about signing up.
Children with Exstrophy Listserve
This listserve is operated by the Hospital for Sick Children and is maintained by Barbara Neilson, a social worker that works with exstrophy families. Please email to inquire about signing up.
Girls Only Listserve
This listserve is operated by the Hospital for Sick Children and is maintained and monitored by Barbara Neilson, a social worker that works with exstrophy families. Only girls (up to 20 years old) with exstrophy can join this listserve. Please email to inquire about signing up.
Boys Only Listserve
This listserve is operated by the Hospital for Sick Children and is maintained and monitored by Barbara Neilson, a social worker that works with exstrophy families. Only boys (up to 20 years old) with exstrophy can join this listserve. Please email to inquire about signing up.

Tri-State Bladder Exstrophy Support Group
Westchester Medical Center
Contact: Dr. Edward Reda
19 Bradhurst Avenue, Suite 2575
Hawthorne, NY 10532
Phone (914) 493-8628 FAX (914) 493-8564 or email info@pedsurology.com

Accord Alliance
398 Columbus Avenue, #294
Boston, MA 02116-6008
http://www.accordalliance.org
Accord Alliance's mission is to promote comprehensive and integrated approaches to care that enhance the health and well-being of people and families affected by DSD by fostering collaboration among all stakeholders.

Advocates for Informed Choice
P.O. Box 676
Cotati, CA 94931
Phone: (707) 793-1190
email: director@aiclegal.org
http://aiclegal.org
The first organization in the country to undertake a coordinated strategy of legal advocacy for the rights of children with intersex conditions or DSDs. AIC has formed a national network of advocacy groups, legal and medical experts, parents and allies, all interested in supporting children born with differences of sex development, or DSDs (also known as intersex conditions).

Intersex Society of North America (ISNA)
979 Golf Course Drive #282
Rohnert Park, CA 94928
http://www.isna.org
This organization has been disbanded after handing over its mission to Accord Alliance. However, its website is being maintained and it offers many valuable resources.

Androgen Insensitivity Syndrome Support Group (AISSG)
PO Box 2148
Duncan, OK 73534-2148
http://www.aissgusa.org

Androgen Insensitivity Syndrome Support Group Canada (East)
#206, 115 The Esplanade
Toronto, Ontario M5E 1Y7 Canada
email: sallie@ican.net (English)
email: orquideequebec @yahoo.ca (French)

Androgen Insensitivity Syndrome Support Group Canada (West)
#17, 3031 Williams Road
Richmond, B.C. V7E 1H9 Canada
email: lesnick @shaw.ca

CARES Foundation Congenital Adrenal Hyperplasia Education & Support
189 Main Street, 2nd floor Millburn, NJ 07041
http://www.caresfoundation.org

Klinefelter Syndrome and Associates
11 Keats Court Coto de Caza, CA 92679
http://www.genetic.org/ks/

The Magic Foundation
6645 W. North Avenue Oak Park, IL 60302
http://www.magicfoundation.org

MRKH Organization
P.O. Box 301494 Jamaica Plain, MA 02130
http://www.mrkh.org

Turner Syndrome Society of the U.S.
14450 TC Jester, Suite 260 Houston, TX 77014
http://www.turner-syndrome-us.org

XY Turner
Box 5166 Laurel, MD 20726
http://www.xyxo.org

The UK Intersex Association
http://www.ukia.co.uk/