HEA graphic

Our Mission

HEA is committed to providing the following services to our members, friends and the general public:

  • We create and nourish a community that erodes the isolation and shame brought about by hypospadias and epispadias.
  • We act as a center of information and experience for parents and adults who are considering the available treatment options.
  • We provide a forum for an open exchange of information between the hypospadias/epispadias community and our health care providers.
  • We educate the public at large about the prevalence of these conditions and remove their stigma.
Support and education to end isolation

News

Election of HEA Board, updated 1/9/2012
link to full story

Chat Room Is Working, 1/9/2012
link to full story

DEEP UNDERSTANDING: The HEA Website Project, 1/9/2012
link to full story

Video of Tiger Devore,
updated 12/28/2011
link to full story

Antuanettekl Private Message Is Spam, 12/23/2011
link to full story

Latest HEA Newsletter Online, 12/4/2011
link to newsletter in PDF format

 

Upcoming Events

Newsletter
March 2012

New Feature:
Toilets From Hell

Catch the Toilets From Hell photos of toilets we wouldn't use if someone paid us $1,000,000. Please submit more photos to the Toilets From Hell project. We aim to shame!

Hit Counter

Map of Our Visitors

The HEA Website Project

by Betty Engel, HEA Webmaster

Our newly-updated website went online in December, 2011. I'm still moving some of the old website content to this new site. Everything (stories, surgery blogs, newsletters in web format, etc.) should be moved over by the end of January, 2012.

This website contains more information than the old site. The content is being written by the members of the HEA community so that it is both accurate and written from an insider-perspective, from their own experiences and the experiences of other community members.

We don't have all the answers, and some of the content is controversial. But we can offer information that is relevant and based on real life experiences. We can't say we're a representative sample of all people with HS or ES or related conditions, but we can offer what researchers call the deep understanding not possible in statistically-based research, textbooks, or medically-based websites.

We are seeking help from any HEA website user who is willing to pitch in and write some of this new content. We'll help you if you need help, but only you can provide the deep understanding based on your own experiences that our website visitors need and can't find elsewhere. To participate, send email to the link below.


Can you improve on or add to the content on this page or other pages? Send email here.

Copyright © 2001-2012, Hypospadias & Epispadias Association, Inc. All rights reserved.
Please respect our privacy and our rights by not copying any of the photos or personal material on this website.