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Our Mission

HEA is committed to providing the following services to our members, friends and the general public:

  • We create and nourish a community that erodes the isolation and shame brought about by hypospadias and epispadias.
  • We act as a center of information and experience for parents and adults who are considering the available treatment options.
  • We provide a forum for an open exchange of information between the hypospadias/epispadias community and our health care providers.
  • We educate the public at large about the prevalence of these conditions and remove their stigma.
Support and education to end isolation

Election of 2012 HEA Board

The election of the HEA Board has been completed. The HEA Bylaws require that the HEA Board be elected by current HEA members, while the Executive Board (Officers) are chosen at the first meeting of the HEA Board. The new HEA Board met on January 7, 2012, and the following people volunteered to serve as officers: Tiger Devore (President), Doug Jasper (Vice-President), Cherise O'Kennedy (Secretary), Jim Lake (Treasurer). The Board is also responsible for appointing the HEA Staff. The HEA Board reappointed Billy Deegan as Executive Director and Betty Engel as Webmaster at the January 7th meeting. As in the past, all members of the HEA Board and Staff are volunteers.

The members of the all-volunteer 2012 HEA Board and staff are listed in the following table.

 
HEA 2012 Board of Directors
Person's Name City, State, Country Reason for Interest in HEA Past Contributions to HEA
Bill Bickerstaff New York, NY, USA HEA friend & ally member since 2007, long-time HEA Board member, researches funding sources
Cherise O'Kennedy, HEA Secretary Vancouver, BC, Canada mother of child with hypospadias member since 2007, HEA Board member since 2009, 2010 HEA Walk, 2011 HEA Secretary
Doug Jasper, HEA Vice-President San Antonio, TX, USA has hypospadias member since 2001, long-time HEA Board member, 2003 HEA Executive Director, hosted 2010 conference cookouts, answers all contact form submissions, extensive knowledge of DSDs
Greg Sonnenberg Arvada, CO, USA has epispadias long-time member and HEA Board member, HEA President for 2 years in the mid-2000s
Jim Lake, HEA Treasurer Wauconda, IL, USA has hypospadias member since 2001, long-time HEA Board member, HEA Treasurer since 2004, hosted 2 Lake County Health Dept. trainings on DSDs for HEA, founded annual HEA Walk, HEA Walks 2009-2011, 2011 conference co-organizer
Josephine Prince Grand Rapids, Michigan, USA mother of child with hypospadias member since 2010, HEA Board since 2011, hosted 2011 Spaghetti Dinner Fund Raiser
Mohamed Fahmy Cairo, Egypt pediatric surgeon and author of textbook on hypospadias member since 2011
Nancy Mayginnes Schaumberg, IL, USA mother of child with bladder exstrophy and a child with hypospadias member since 2007, HEA Board since 2009, newsletter organizer 2010-2011, 2011 HEA Walk, 2011 conference co-organizer
Tiger Devore, HEA President New York, NY, USA has hypospadias and PhD psychotherapist and sex therapist of people with DSDs long-time member and HEA Board member, 2011 HEA Vice President, regular writer for the newsletter, internationally-known expert on DSDs, TV and radio expert guest and HEA promoter
HEA 2012 Staff
Person's Name City, State, Country Reason for Interest in HEA Past Contributions to HEA
Billy Deegan, HEA Executive Director New York, NY, USA HEA ally & psychotherapist of people with DSDs Executive Director since 2004, 2004-2008 conference organizer, 2010-2011 HEA Spaghetti Dinners, 2010-2011 HEA Walks, represented HEA at national and international conferences
Betty Engel, HEA Webmaster New York, NY, USA HEA ally & friend member since 2008, webmaster since 2008, newsletter organizer 2009

 

News

Election of HEA Board, updated 1/9/2012
link to full story

Chat Room Is Working, 1/9/2012
link to full story

DEEP UNDERSTANDING: The HEA Website Project, 1/9/2012
link to full story

Video of Tiger Devore,
updated 12/28/2011
link to full story

Antuanettekl Private Message Is Spam, 12/23/2011
link to full story

Latest HEA Newsletter Online, 12/4/2011
link to newsletter in PDF format

 

Upcoming Events

Newsletter
March 2012

New Feature:
Toilets From Hell

Catch the Toilets From Hell photos of toilets we wouldn't use if someone paid us $1,000,000. Please submit more photos to the Toilets From Hell project. We aim to shame!

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