Our Mission

HEA is committed to providing the following services to our members, friends and the general public:

• We create and nourish a community that erodes the isolation and shame brought about by hypospadias and epispadias.
• We act as a center of information and experience for parents and adults who are considering the available treatment options.
• We provide a forum for an open exchange of information between the hypospadias/epispadias community and our health care providers.
• We educate the public at large about the prevalence of these conditions and remove their stigma.

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So, something is not feeling quite right down there. . . . Maybe you are noticing your stream decreasing when you void, or pain in your testicle or your side or lower back. It might hurt a bit when you void or you find you have to strain to empty your bladder. Maybe you are feeling lumps or hard spot in your penis, discomfort during sexual activity, or maybe you are having a lot of urinary tract infections. What does it mean?

The following is a list of some of the issues or complications that can happen:

• Strictures (this seems to be the most frequently occurring issue by far)
• Narrowing of the meatus (opening of the urethra)
• Blockages such as those resulting from hair growing in the urethra
• Stones in the urethra (possibly due to hair growth in the urethra)
• Epididymitis (pain in that passage way from the testicle to the urethra)
• Fistulas (an extra hole that fluids can pass through—like springing a leak)
• Diverticulum (a widening of an area along the urethra that pouches out when filled with fluid)
• Chronic urinary tract infections

Related Information: Accord Alliance's Talking with Your Child's Medical Care Providers.

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